Showing posts with label HLHS. Show all posts
Showing posts with label HLHS. Show all posts

Wednesday, January 07, 2009

MY LATEST OBSESSION

My Latest Obsession
My latest obsession is rewarding yet depressing at times and of course it involves reading the ever addictive blogs so you know I am hooked. Anyone who reads my blog knows about Maddox. Maddox's mom, Tammi, is the sister of a co-worker. When Tammi was seven months pregnant with Maddox, the doctors informed her Maddox had HLHS or Hypoplastic Left Heart Syndrome. This is where the left side of the heart is either under developed or not developed at all. A series of three surgeries can be done to fix the heart depending on the severity while other require heart transplants. Tammi was told that if Maddox survived birth that he would only live a few moments. The Doctors said Maddox would need a heart transplant within the first few moments of life and it is rare that a matching heart would be available. Tammi and Manny were devastated. Her sister Brandi asked me to surf the net in hopes of finding answers. I did just that and found a hospital that agreed to look at her case as soon as she could get there. Tammi flew out the next day but due to insurance issues they were not allowed to treat Maddox unless the insurance was cancelled. Tammi could not take this risk in case she needed it for Maddox later on when no one would probably want to insure him. She found a hospital closer to home and finally had Maddox. A beautiful baby boy that underwent countless medical procedures and a few medical mistakes made by the doctors and nurses but he always came out with a smile on his face. I can't even count the number of times Tammi and Manny were told he wasn't going to make it through the night. Maddox was a medical miracle, living through things that even astounded his doctors. God had special plans for Maddox. I would call him Miracle Maddox. I can't imagine being told once that my children were not going to make it through the night and simply thinking about it makes me cry. I got daily updates on Maddox from Brandi and tried to stay up to date with all the HLHS info and his case. I was obsessed with this little boy and all things HLHS! It is odd how I had never even heard HLHS once before Maddox and yet found so many people affected by it on Blogger. I am now obsessed with all "heart babies" and often wonder what I can do. I pour over all of these blogs as if I know each one of them personally. Each successful procedures is exciting for me and I hold my breath for each outcome.


Sadly after several surgeries including his heart transplant in October (yet another miracle ~ he was only on the transplant list for one day!), Maddox passed away unexpectedly on Nov. 21, 2008. Just before leaving the room for a minor routine procedure Maddox gave his Daddy a "noggin" and a kiss and said, "Don't worry Momma I be wight back!" I can't imagine the devastation these young parents are going through especially when the procedure he went in for was only supposed to take a few minutes and he was doing so well. He was supposed to be home for Christmas! At that point he was fine or so they thought. Apparently Maddox was in severe organ rejection and no one knew. Maddox is missed and his family is understandably in an array of emotions. Tammi was pregnant with her second child when Maddox passed away and gave birth to their new healthy baby girl on Jan. 3rd, 2009. No one can replace Maddox EVER and he will NEVER be forgotten but I hope the new baby can at least bring some joy back into their life and maybe take their mind off of the pain if only for minutes each day. It is so sad to see her in a room FULL of family and friends and she is still so distant, in shock, in pain, in denial, angry and seemingly ALONE in her own world with just her and her memories of Maddox. I pray for her to find peace in this new world without her beloved son!

As I mentioned before I have found many going through the trials involved with HLHS then came upon Trisomy 18 and other heart babies. The numbers of cases astounds me and boggles my mind. How can we invent this crazy computer and talk to people all the way around the world but we can't cure defects and diseases of the human body? Maybe we should spend less money on electronic technology for now and erradicate heart defects, cancer and aids. Extreme I know but a girl can dream can't she!


Here are just a FEW of the heart baby blogs that I follow ~ go take a look at these babies who will go through more in their first month of life than most of us go through in a lifetime and they are all smiley happy babies! It will really put your problems into perspective!

Bela Grace, These Nine Months, Fearfully and Wonderfully Made, The Stanfield Journey, Anderson's Avenue, Lily's Angel Heart, Baby's Journey Home, Michael James Sheehan Irwin, Bring on the Rain and of course Mck Mama at My Charming Kids


I told you I was obsessed!!
Did I mention I am completely obsessed with Blogger??
I decided later on to also complete #2 on the Writer's Workshop list feel free to go read it too!

Sunday, November 23, 2008

MADDOX GETS HIS WINGS

I have been meaning to update on Maddox but it has been crazy then I just couldn't do it. The original update was amazing news about how all his levels were good, the heart was basically fixing all the problems on its own, he would be home soon and Tammi would be induced to have their 2nd child (a little girl) on Dec. 18th. This update didn't happen and on Friday Nov. 21st Maddox went home to be with his Heavenly Father who will make his heart whole and mend all his ailments. What an amazing boy! I can't even think of him now without crying because I truly believed he is the biggest miracle I have ever witnessed in my life and it makes me so sad to think about not hearing about another one of his miracles. I just shake my head everytime I even think about everything this boy went through and the amazing transformations that happened over and over that baffled his doctors who could only say "it was yet another miracle because this just doesn't happen!" This boy won a very special place in my heart when Tammi was 6mos pregnant and given no hope. I searched the internet for a doctor who could help Maddox until she was strong enough to believe she could handle it. This loss is devastating and in the beginning she always said she wasn't sure if once she wanted to have him for the fear of having to let him go. I have no clue the pain she is in now but I honestly believe she will never regret for a second all she endured for her baby boy even though in the end he wasn't hers to keep!
I have been thinking about this blog all weekend but everytime (including now) I even think about it I just cry!
I cry because of all the pain this baby endured and still came out of every situation with a miracle and a smile!
I cry at the pain these young parents are experiencing in real life when just the mere thought of losing a child crushes all other thoughts spinning in my head and just makes me cry...just the mere thought!
I cry for all the missed hopes and dreams everyone had for our little miracle boy!
I cry at the thought of a funeral with a casket so small with a boy larger than life and his family just starring at the lost love of their life ~ the baby they fought to save before he was even born then fought the entire 21 months he lived! They are young parents but they matured quickly and the love they had for Maddox and the lengths they went to to get him what he needed was awe inspiring to say the least!
I cry because I know he will be whole now! Surgery free! Pain free! Free to be his ornery funny little smiley self!
I cry b/c I will miss my daily updates and camera phone pics of a boy with tubes, gowns, scars, machines and STILL A SMILE!
I cry because just two days before little Maddox went to be with Jesus his parents were told he was doing great, the new heart was fixing all the problems on its own and he would be HOME before Christmas! His family was so excited to have both babies home for Christmas!
I got the call @ 5:22pm Friday from Brandi and I still do not know what happened but don't want to ask anymore questions than necessary while they are grieving. The funeral is Tuesday in Wagoner and I am unsure if I will be able to attend b/c of Zay's surgery and recovery but please please please pray for Maddox's parents, grandparents, aunts, uncles, cousins and true fans (like ME!)
You've definitely earned your wings baby boy! We love you! Watch over your family, your new little sister and bring them peace - may they always feel your presence and remember your love of life no matter what it brought your way!
These are some of my favorite pics of Maddox

Tuesday, November 04, 2008

MADDOX NEEDS ANOTHER NEW HEART

I realized I hadn't posted about Maddox lately so I decided to update his story again. Apparently although Maddox and his donor, a 5month old little girl, weighed the same (that tells you how small he is at 20 mos. old) her heart was not large enough to compensate for his extra length and his lower extremeties are not getting enough blood flow. The problems with this new heart are not repairable and he is being placed on the donor list once again. This miracle boy and his family still need your prayers!

Saturday, October 25, 2008

PRAYERS FOR MADDOX

Breaking news on the Maddox front of a serious nature, this update came from Tammi yesterday evening after Maddox's surgery:

I once again am sitting here beside myself trying to take in everything that has happened today. Maddox went in to surgery at 7 this morning with the hopes that they could do a repair to his SVC and make his condition better. However, when the surgeon opened him up they realized that repairing the SVC would be of no benefit to Maddox. They came in and informed us that they were re-listing him on the heart transplant list. This has been a very traumatic day for us. We were hoping this would be the blessing Maddox needed to be able to live a healthy life yet once again we are starting over from square one. I for one have been a complete mess all day. They are keeping him sedated for the next 48 hours during which time I am going to attempt to get my emotions under control. No matter how much I am hurting I WILL pull it together to be there to hold his little hand and fight this fight with him. Please keep praying.
Love
Maddox's Mom
Please keep Maddox and his family in your prayers!

Thursday, October 23, 2008

MADDOX NEEDS ANOTHER SURGERY

I received a new update from Tammi this evening and Maddox has had a setback. Here you go:
I am extremely saddened to inform all of you that Maddox is going to have to undergo another open heart surgery.Maddox is having backflow of blood to his head that is causing him headaches and elevated pressures in his heart. The only way to fix this problem is to perform another open heart surgery. This surgery would be a very complex surgey as it would require Dr. Frasier to essentually create a vein using Maddox's tissues. My poor baby isn't even 2 years old yet and this will be his fourth open heart surgery.Once again I ask everyone to pray for his safety during this procedure and hopefully he will gain some relief from this intervention.
Thanks
Maddox's Mom

Tuesday, October 21, 2008

MIRACLE MADDOX

It has been almost two weeks since Maddox's transplant surgery and he is doing GREAT!! They thought last Thursday that his body might be rejecting the new heart however the biopsy revealed otherwise and he is doing sooooo good!! Tammi and Manny can finally relax a little and look forward to the new baby girl they are expecting. I know I have said it before but Maddox's story amazes me each and every day. He is a truly blessed child with the hands of the Great Physician on his heart at all times. Truly a miracle boy!

Tuesday, October 14, 2008

MADDOX THE MIRACLE BOY

I forgot to blog (I think!) about Maddox's 2nd CAT scan. After the first scan, Maddox was diagnosed with minimal brain damage but they wanted to wait until he woke up to see his reactions. When he woke up, Maddox recognized everyone and talked up a storm. They did a 2nd scan before placing him on the donor list and the damage that was present in the 1st scan was GONE! He had absolutely NO brain damage ~ yet another miracle amazing his doctors with every chance he gets! After ONE day on the transplant list ~another miracle ~ Maddox got a new heart. Days later...Maddox is doing great ~ even better than expected!! He had a slightly irregular heartbeat that the doctors said would even itself out and it did. He now has high blood pressure but the doctors say it is also nothing to worry about. They said his pressure will even out also and is caused by the heart being a little small. The donor was a 5 month old baby girl who passed away. Tammi was able to write a letter to the donor family but now any contact must be made by the donor family and Tammi will not know anything else unless they contact her. It is a bittersweet moment for Tammi knowing that her baby can now live BUT another mother has empty arms and a broken heart to provide Maddox with this chance! Continue to pray for all of those involved!

Friday, October 10, 2008

MADDOX UPDATE

Maddox's transplant surgery didn't get started until yesterday evening so it took even longer to get news. The new heart started beating on its own at 12:39am and surgery ended at 3:30am. Maddox is now in ICU recovering. Keep the prayers coming! Maddox's life amazes me everyday and the miracles in this baby's life are countless so I know he will be fine and maybe his parents will have a little less worry from day to day!

Thursday, October 09, 2008

MADDOX'S NEW HEART

The doctors decided to have another look for brain damage since Maddox seemed his normal self and to their surprise the minor brain damage that was present on the first scan was no longer there. After further testing to make sure he could still be a heart transplant candidate, the Doctors added Maddox to the transplant list YESTERDAY! This morning while Tammy and Manny left for a break they got a call from his nurse telling them to come back immediately because they have a heart available that matches Maddox and he needs to be prepped for surgery STAT!! I HAVE TOLD YOU GUYS OVER AND OVER THIS KID IS A MIRACLE!! How many people do you hear about on the transplant list that only wait one day!?!?!? NONE! He went into surgery a couple of hours ago and I am sure it will take most of the day but she promised to keep us updated. Pray for Maddox, his family, the transplant team at the Heart Center at Texas Children's Hospital in Houston and the family of the tiny donor that made this surgery possible & gave Maddox another chance at a longer life!!

Thursday, October 02, 2008

MIRACLE BOY

I truly believe Maddox is a miracle! This kid repeatedly defies medical odds and amazes his doctors with his strength and will to survive. Just one week ago the doctors were trying to explain the severity of his condition and trying to convince Tammi basically to let go but she would not. I tear up just thinking about the words, "Call your family, friends and priest b/c he is NOT going to make it!" I can not imagine even hearing those words ONCE let alone the handfuls of times Tammi and Manny have heard them BUT he has pulled through each and every time! I just shake my head at the mere thought of every thing this little boy has been through and survived with a smile on his face. As you can tell the prayers are working and there is some good news on the Maddox front. As of yesterday Maddox is off life support, infection free and ventilator free only needing extra oxygen through a nasal cannula. Amazing! They did a CAT scan yesterday to determine the severity of brain damage due to the MANY times he coded and his brain was without oxygen in the past few weeks. This is important b/c besides the obvious reason of just needing to know, the severity of brain damage would determine Maddox's eligibility to be placed on the transplant list. Tammi's brain working overtime decided that b/c Maddox is VERY intelligent for a child his age that maybe a little brain damage would just give him the normal intelligence of a child his age - the power of hope! Can you believe it b/c the doctors couldn't?!?! The amount of brain damage was minimal which shocked the docs who had said it did not look good; however, before the excitement could set in they wanted him to wake up to see how he would act. He was in and out just waking up for minutes at a time UNTIL last night around 10:30pm I received a text from Brandi stating MADDOX WAS AWAKE AND TALKING LIKE CRAZY SO THEY THINK HIS BRAIN IS FINE - THANK GOD!! It is funny how those of us who have known Maddox's story since Tammi was pregnant are just in awe at the miracles that continue to happen in this family's life!! Just when you think there is nothing left to hope for and nothing left to be done......he survives whatever is placed in front of him and gets stronger for his next battle! Maddox still has a long road ahead but this is a huge roadblock that he has overcome! Keep them in your prayers!

Sunday, September 28, 2008

TAMMI AND MADDOX

Maddox is still critical. They are needing to take him off of one of his medications; however, it must be done slowly and each time they attempt to take him off he codes. He coded three times on Monday, four times Tuesday then again on Wednesday and after that I am not really sure what has happened. He is still really swollen. He attempted to wake up at one point but they immediately sedated him again because of his thrashing around. Brandi went down there for three days and was saddened that she didn't even recognize her little nephew. The doctors are frustrated with Tammi and are telling her there isn't anything they can do short of a transplant and Tammi is very frustrated with the doctors for wanting to give up on her baby boy and unwilling to let go of the hope she regained when he tried to wake up and squeezed her finger when she talked to him. Keep this family in your prayers!

On another note Tammi went to the ob/gyn and found out she is having a baby girl that is perfectly fine - no heart defects present!! What a relief!! However, she ended up in the ER this weekend with contractions. They believe it is do to too much stress, dehydration, kidney stones and an infection they are now treating. I wish there was something/anything I could do for this young family but all I can do at this point is put their story out there and ask for prayer and support!

Monday, September 22, 2008

MAD MAN MADDOX

Another update came to work yesterday from Tammi's mom who is in Houston. Apparently Manny slept with Maddox and woke up to alarms going off and saw his legs purple and he wasn't breathing. Doctors started compressions and different meds to bring him back several times unfortunately even though they could get his heart started they could not get it to keep beating. After 3 hours of working, Maddox was put on medication to paralyze his body, then life support and some other machine. They had the family come in and called the priest however Tammi wasn't having any of that insisting there was no reason for any of this b/c her son was not going to die. I can't imagine their pain! Their only hope right now is the paralyzing meds will give his body a rest and that the swelling in the heart will go down in which case they will try to take him off the machines slowly to see how his heart will react. Later last night Tammi sent out a bulletin that read:



Unfortunately, Maddox is not doing well at all. He developed an infection in his blood from his central line. He coded yesterday in his hospital room with me and Manny present. The doctors came in and started chest compressions and tons of drugs to try and stabilize him. He is still very very sick and is on complete support in the CVICU. The doctors say it is touch and go at this point in time. He is very very sick. Please say a prayer for him

MINOR OBSESSIONS MONDAY

I've been especially bad this past week!! I have become an avid reader of many blogs this week. If you read my blog, then you have heard about Maddox. I was checking up on my counter and seeing where my readers were coming from when I saw someone had googled HLHS and been led to my site. I then decided to check out the other blogs it had listed. I guess I never expected to see that many. Like most people I know, I had not even heard of HLHS until Maddox was diagnosed while Tammi was pregnant. I didn't realize there were so many out there like him. Of course, I had to look at each blog and then read its ENTIRETY! I just cry, smile, clinch my jaw, shake my head and stare in awe at these tiny little lives and their families. All affected by heart defects and the amazing yet dangerous surgeries to fix them AND the babies are smiling, calm, happy, loved, peaceful and stronger than most adults I know. I feel for the all parents of children affected by heart defects and often wonder if I would be strong enough to handle it without breaking. They have to COMPLETELY trust the Doctors and the abilities that God has given them. I don't know if I could just sit and wait for most of the day wondering if my baby was still alive, I know deep down THAT is just what a parent does b/c it isn't like they have a choice but I think I would need to be sedated. Wow it is so overwhelming! And then there is Trisomy 18 which before now I had never even heard of and WOW you'll just have to read it will change you! Anyway here you go with the Minor Obsessions Monday blog list:

  1. The Stanfield Journey
  2. Lily's Angel Heart
  3. Michael James Sheehan Irwin
  4. Milnes
  5. Baby's Journey Home
  6. These Nine Months has some good HLHS links and last but not least her husband's blog Fearfully and Wonderfully Made. Brooks the husband blogged during the hospital stay and initial surgery in August and it was nice to see a man's view and he is a great writer full of emotion

I am sure there are many more out there but these are the new blogs I have been reading this week! It was nice to see some babies with heart defects doing well. I will continue to keep Maddox in my thoughts and prayers but now I will include Faith, Emma Kate, Mick, Lily, Bela, "Baby" and the many others that I don't yet know about.

Friday, September 19, 2008

UPDATE ON MADDOX

Tammi finally had a chance to update us on Maddox and here is what she said:

The cardiologist performed a heart cath on Tuesday to try and determine the pressures and function of Maddox's heart. During the procedure they discovered the three main problems he is having are

1.His tricuspid valve is severely leaking
2.Only 1/3 of his blood flow is going to his lungs ( it should be at least 2/3 )
3. His heart is extremely dilated (large) and it takes up over 2/3 of his chest from being overworked.

There is a surgery called the Fontan that would fix these problems. However, Maddox wasn't supposed to have this surgery for another 2 years. The surgeons think it would be too high risk to perform this surgery just 5 months after the last heart surgery and with his heart in this condition. Therefore, we met with the transplant team on Wednesday. They are doing all of the blood work and paper work now to get Maddox placed on the transplant list.

As I'm sure you can imagine this is all very scary for me, Manuel and all of our family. We will have to move to Houston and live within one hour of the hospital and carry a pager at all times. This is in case a heart becomes available we would have to be close enough to the hospital to get here in time for the organ. Please keep him in your thoughts and prayers. He has made it through so much already and I know his time isn't done here on earth. However, it is deeply saddening to know that another child will have to lose his life for my son to live. I ask that you not only pray for Maddox and our family but for all the families that are going through the same thing we are. I will update you as we know more.

Thursday, September 18, 2008

UPDATES FROM TAMMI

Yesterday the cardiologists came to tell Tammi this: the good news is his heart doesn't have anything that NEEDS to be fixed and the bad news is his heart doesn't have anything that we CAN fix. Maddox will remain on his current medication and he will be placed on the transplant list with no earthly idea how long he will wait or if he will make it that long. Another issue that was not told to Tammi and Manny is now that Maddox is on THIS medication he can NOT be taken off of it and he can NOT leave the hospital while he is on it. Short story: he will be living at the hospital until his transplant. How in the world?? His little friend is a 6yr old transplant recipient that waited 5 yrs for a heart and b/c she too was on this medication, she lived in the hospital for 5yrs. 1) what kind of life is that and 2) how exactly does that work? Tammi is 6mos pregnant so how will she take care of the newborn at home and still be with Maddox at the hospital. I am clueless at this point. I understand many people have probably lived this way but it is beyond my realm of understanding. Please keep them in your prayers! No parent should have to endure this and stories like this just make me appreciate my life and my 2 healthy boys even more. Sometimes we take those things for granted until the story of someone else's life wakes us up! I am awake now! I can't imagine pain like that and hope I never will! I have to believe in the power of prayer and yet another miracle for Maddox, the walking, talking Miracle boy!

Monday, September 15, 2008

REALLY?

If you read my blog you know about baby Maddox and the drama surrounding the family. Well to top it all off...listen to this! Tammi, Manny, Maddox and both of his Grandmas were in the hospital in Houston this weekend. They evacuated everyone that wasn't medical staff or patients due to the impending hurricane. Tammi is 6mos pregnant with their second child and she was also kicked out. They went to a nearby hotel for Saturday night but were kicked out of the hotel Sunday morning for two reasons..1) all the windows in the hotel were broken except for the room they stayed in (miracle) and 2) they had used all their cash onhand to pay for the first night and the hotel couldn't run a credit card for the second night. ARE YOU KIDDING ME? I would be raising some major hell if I was 6mos pregnant with my baby in the hospital not knowing if he would live or die alone AND they kick them out into the flooded streets. The water was up to their knees so they couldn't drive anywhere so they walked or I guess waded 5 freaking blocks back to the hospital. The hospital STILL wouldn't let anyone in until 6pm Sunday evening SO they waited and waded outside the hospital until 6pm - cold, wet, stressed and pregnant! YOU HAVE GOT TO BE FREAKING KIDDING ME! HAVE A HEART HOUSTON! They made it through the storm and Maddox is still listed as critical. They are trying a new medication which if it works for now he will still probably need a heart transplant and would be on the medication for the rest of his life!! Please keep them in your prayers! I wish you guys could meet the little walking miracle b/c no matter how bad you would feel for him HE would make YOU smile!

Friday, September 12, 2008

PRAYERS FOR MADDOX

I would like to introduce all of you to Maddox and ask for some major prayers. Tammi, Maddox's mom, is the younger sister of a girl I have worked with for many years. In the fall of 2006, Tammi was told while 6 months pregnant that her baby had HLHS, hypoplastic left heart syndrome and to terminate the pregnancy. She was told the baby would need an immediate heart transplant if born alive and most of the time hearts are not available so the baby would die shortly after birth. Tammi was very depressed and was giving up so I searched every end of the internet to find her some hope. I printed off everything I could to give to her hoping she could find someone to help her and the baby. The next morning she called Michigan University or maybe it was the University of Michigan anyway she left the next day to go see a specialist. They told her he had a version of the defect and they could help but because of insurance reasons they could not legally help her. If she didn't have insurance then they could have helped her. After months of searching for help she found it. In February 2007, Maddox was born. Immediately he was taken and hooked up to different machines and she was unable to hold him until he was 20 days old. I can't imagine her pain! Maddox went through many medical procedures and two or three open heart surgeries. They have been told countless times that he would not make it and to say their goodbyes. His heart stopped many times during different procedures but they always managed to bring him back. He has even been placed on life support and come out of it. Doctors and nurses have even screwed things up a time or two and he still survives! I am so proud of Tammi and Manny. They are young parents but they are strong! I can't believe how strong they are and Maddox is just a little soldier. I call him a walking, talking, ornery miracle!! He just makes it through everything. You would never know he is even sick because besides taking medicine daily and being small for his age he has no physical indications of his problems. All of his surgery scars are hidden by his shirt! They relocated to Texas to be closer to his cardiologist and now Tammi is 6 mos pregnant with her second child. She is so scared to go to her doctor appts for fear they will tell her the new baby also has the heart defect. His most recent major surgery was in the spring of 2008 and they were told he wouldn't need another surgery until he was three maybe four years old. Wednesday the call came that Maddox is in major heart failure and more than likely he will need a heart transplant. The entire family is devestated and all the while Maddox gets on the phone with his Aunt Brandi and says, "Heeey baaby! Wassup!". I think Tammi is understandably at her lowest. Honestly your 19month old ball of energy might need a transplant to survive but how do you pray and hope for a new heart knowing that someone else's baby will have to die for your child to live! I am just praying that some different medicine will help and it will not come to that point! No parent should have to go through this. They are young parents, only 21 and 22, but they are resilient and stronger than many parents I know but they need everyone's prayer because now more than ever before they understand how much the power of prayer has helped their little boy! Here is a copy of the bulletin she sent out:

Unfortunately, Maddox is back in the hospital! I took Maddox to the pediatrician on Tuesday to get him checked out. He had played with a little girl on Sunday who wound up in the hospital with pneumonia and strep throat. Maddox hadn't really been acting sick, although I had noticed he seemed to be having more difficulty breathing. Anyhow, when we were at the pediatrician Maddox's oxygen was only 63%. The pediatrician called for an ambulance and they transported us to the ER. Once in the ER they did several blood tests and a chest xray. One of the tests they ran was a BNP this is used to determine heart function. Maddox's BNP was 1140. 0-99 is normal. With the results from that test they then transported us by ambulance back to Houston. Last night they re-did the BNP and Maddox's levels had risen to over 3000. The doctors said his heart function is now considered severe. They are trying to switch medications to help improve his heart. However, it is up in the air as to whether that will be enough for him. If the meds do not work they will move us to ICU place him on a drug called milrinone and consider heart transplantation. All of this being said I believe in the power of prayer. I believe that there is no possible way god will take my sweet angel from me. So I am asking everyone to pray and keep him in your hearts. I will update everyone when I know more.

Maddox playing with crawfish