Sadly after several surgeries including his heart transplant in October (yet another miracle ~ he was only on the transplant list for one day!), Maddox passed away unexpectedly on Nov. 21, 2008. Just before leaving the room for a minor routine procedure Maddox gave his Daddy a "noggin" and a kiss and said, "Don't worry Momma I be wight back!" I can't imagine the devastation these young parents are going through especially when the procedure he went in for was only supposed to take a few minutes and he was doing so well. He was supposed to be home for Christmas! At that point he was fine or so they thought. Apparently Maddox was in severe organ rejection and no one knew. Maddox is missed and his family is understandably in an array of emotions. Tammi was pregnant with her second child when Maddox passed away and gave birth to their new healthy baby girl on Jan. 3rd, 2009. No one can replace Maddox EVER and he will NEVER be forgotten but I hope the new baby can at least bring some joy back into their life and maybe take their mind off of the pain if only for minutes each day. It is so sad to see her in a room FULL of family and friends and she is still so distant, in shock, in pain, in denial, angry and seemingly ALONE in her own world with just her and her memories of Maddox. I pray for her to find peace in this new world without her beloved son!
As I mentioned before I have found many going through the trials involved with HLHS then came upon Trisomy 18 and other heart babies. The numbers of cases astounds me and boggles my mind. How can we invent this crazy computer and talk to people all the way around the world but we can't cure defects and diseases of the human body? Maybe we should spend less money on electronic technology for now and erradicate heart defects, cancer and aids. Extreme I know but a girl can dream can't she!
Here are just a FEW of the heart baby blogs that I follow ~ go take a look at these babies who will go through more in their first month of life than most of us go through in a lifetime and they are all smiley happy babies! It will really put your problems into perspective!
Bela Grace, These Nine Months, Fearfully and Wonderfully Made, The Stanfield Journey, Anderson's Avenue, Lily's Angel Heart, Baby's Journey Home, Michael James Sheehan Irwin, Bring on the Rain and of course Mck Mama at My Charming Kids